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Resources for Patients

 

Patient Support Groups

    Incontinence

National Association for Continence (NAFC)
P.O. Box 17864
Milwaukee, SC  53217
1-888-BLADDER
www.nafc.org

The Simon Foundation for Continence
P.O. Box 815
Wilmette, IL  60091
1-800-23-SIMON
www.simonfoundation.org

National Kidney Foundation
30 East 33rd Street
New York, NY  10016
1-800-622-9010
www.kidney.org

Pain

The International Pelvic Pain Society
2006 Brookwood Medical Center Drive, Suite 402
Birmingham, AL  35209
(205) 877-2050
www.pelvicpain.org

The Vulvar Pain Foundation
P.O. Box 177
Graham, NC  27252
(910) 226-0704
www.vulvarpainfoundation.org

National Vulvodynia Association (NVA)
P.O. Box 4491
Silver Spring, MD  20914
(301) 299-0775
www.nva.org

Interstitial Cystitis Association
P.O. Box 1553
Madison Square Station
New York, NY  10159
(212) 979-6057
www.ichelp.org

The American Fibromyalgia Syndrome Association
P.O. Box 9699
Bakersfield, CA  93389
www.afsafund.org

The Fibromyalgia Network Newsletter
P.O. Box 31750
Tucson, AZ  85751
www.fmnetnews.com

Coccydynia Website
(Information / Resources for Coccydynia Sufferers)
www.coccyx.org

Endometriosis Association, Inc.
8588 North 76th Place
Milwaukee, WI  53223
1-800-922-ENDO
www.endometriosisassn.org

Male Support

Prostate Cancer Survivor Support Group
7501 Lemont Road, Suite 215
Woodridge, IL  60517
1-800-828-7866
www.ustoo.com

Man to Man
24600 Northwestern Hwy.
Southfield, MI  48075
(313) 356-8870

Impotence Institute of America Inc.
2020 Pennsylvania Avenue NW
Washington, DC  20006
1-800-669-1603

Impotence Information Center
Dept. USA
P.O. Box 9
Minneapolis, MN  55040
1-800-843-4315

The Prostatitis Foundation
1063 30th Street, Box 8
Smithshire, IL  61478
1-888-891-4200
www.prostate.org

Miscellaneous

National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT  06812
1-800-999-6673
www.rarediseases.org

International Foundation for Functional Gastrointestinal Disorders (IFFGD)
P.O. Box 17864
Milwaukee, WI  53217
1-888-964-2001
www.iffgd.org

Intestinal Disease Foundation (IDF)
1323 Forbes Avenue, Suite 200
Pittsburgh, PA  15219
www.intestinalfoundation.org

United Ostomy Association
36 Executive Park, Suite 120
Irvine, CA  92714
1-800-826-0826
www.uoa.org

Arthritis Foundation
P.O. Box 19000
Atlanta, GA  30326
www.arthritis.org

 

Bibliography

Women's Waterworks  Pauline Chiarelli, Health Books Urogyn Therapies Bookhouse  (563) 332-4772.

Staying Dry  Kathryn Burgio, John Hopkins University Press, Baltimore, MD  ©1989.

What You Can Do About Bladder Control  Nancy Bruning  ©1992.  Available from the National Association for Continence (NAFC) 1-800-BLADDER.

Managing Incontinence  Cheryl B. Gartley.  Available from The Simon Foundation 1-800-23-SIMON.

The Prostate Book  Available from NAFC (see above).

Waking Up Dry  Dr. Martin Scharf, Writer's Digest Book ©1986.  Available from NAFC.

Dry All Night  Allison Mack, Little Brown & Co. ©1989.  Available from NAFC.

Chronic Pelvic Pain, An Integrated Approach  Steege, Metzer and Levy,  WB Saunders Co., Philadelphia ©1998.

You Don't Have To Live With Cystitis  Gillespie, Avon Books, NY.

Beyond Kegels  Hulme, Phoenix Publishing CO., PO Box 8231, Missoula, MT 59807  ©1997